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Huntington's Disease Society of America Center of Excellence at the University of Rochester

(Program)

* Offers supportive services for persons with Huntington's Disease and their caregivers.
  • Mutual support group for those with Huntington's Disease and those at risk.
  • Dissemination of information on Huntington's Disease.
  • Care and education to all affected by Huntington's Disease through the┬áHuntington's Disease Family Center.
  • Education of professionals toward better understanding, treatment and care of Huntington's Disease.
  • Clinical research and drug trial observations.

Eligibility: None.

Application Process: Please call ahead before attending your first group meeting. Call Amy Chesire at 585 341-7519 or email amy_chesire@urmc.rochester.edu.

Required Documentation: Call for information.

Fees: Support group: no fees. Huntington's Disease Family Center, University of Rochester: Medicaid. Medicare. Third party insurance. No one refused service based on inability to pay.

Cayuga, Livingston, Monroe, Ontario, Seneca and Wayne Counties.

Huntington's Disease Society of America Center of Excellence at the University of Rochester
(Agency)

Huntington's Disease Society of America provides outpatient clinical care, support, education and clinical trials for patients and families affected by Huntington's disease.

919 Westfall Road
Bldg C
Suite 100
Rochester NY 14618

Website: www.hdsa.org

Hours: M-F 8:00AM-5:00PM

Disabled: Not Applicable

Contact

919 Westfall Road
Bldg C
Suite 100
Rochester NY 14618

Hours

Support group: Mar-Dec on the 2nd TU of every month 6:30PM-8:00PM

This program is offered at this site:

Huntington's Disease Society of America Center of Excellence at the University of Rochester

Main Address:

919 Westfall Road
Bldg C
Suite 100

Rochester NY 14618

Main:
Toll Free:
800-345-4372 (National headquarters)
Website:

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