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Disability Information and Support Services


* Provides comprehensive health care services and support to MDA families.

Eligibility: Must hold the diagnosis of one of the 43 diseases classified under Muscular Dystrophy. https://www.mda.org/disease/list

Application Process: Call for information.

Required Documentation: Call for information.

Fees: Call for information.

Cayuga, Livingston, Monroe, Ontario, Seneca, and Wayne Counties.

Muscular Dystrophy Association Inc

Muscular Dystrophy Association is dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. 

Website: www.mda.org

Hours: M-F 9:00AM-5:00PM


601 Elmwood Avenue
Rochester NY 14642

This program is offered at these sites:

Muscular Dystrophy Association

Main Address:

161 North Clark

Suite 3550

Chicago IL 60601

585-424-6560 (Local Care Specialist - Sarah Fewkes)
833-275-6321 (Resource Center)

Muscular Dystrophy Association-Rochester Care Center (University of Rochester/Strong Hospital)

Main Address:

601 Elmwood Avenue

Rochester NY 14642

585-275-2559 (Strong Neuromuscular Clinic - Direct Line for Appointments)

422 South Clinton Avenue
Rochester, NY 14620

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