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Huntington's Disease Society of America Center of Excellence at the University of Rochester

provided by Huntington's Disease Society of America Center of Excellence at the University of Rochester

* Offers supportive services for persons with Huntington's Disease and their caregivers.
  • Mutual support group for those with Huntington's Disease and those at risk.
  • Dissemination of information on Huntington's Disease.
  • Care and education to all affected by Huntington's Disease through the┬áHuntington's Disease Family Center.
  • Education of professionals toward better understanding, treatment and care of Huntington's Disease.
  • Clinical research and drug trial observations.

Eligibility: None.

Application Process: Please call ahead before attending your first group meeting. Call Amy Chesire at 585 341-7519 or email amy_chesire@urmc.rochester.edu.

Required Documentation: Call for information.

Fees: Support group: no fees. Huntington's Disease Family Center, University of Rochester: Medicaid. Medicare. Third party insurance. No one refused service based on inability to pay.

Coverage Note: Cayuga, Livingston, Monroe, Ontario, Seneca and Wayne Counties.

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Toll Free:
(National headquarters)
Hours:
M-F 8:00AM-5:00PM.

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Huntington's Disease Society of America Center of Excellence at the University of Rochester

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