Huntington's Disease Society of America Center of Excellence at the University of Rochester
provided by Huntington's Disease Society of America Center of Excellence at the University of Rochester
Huntington's Disease Society of America Center of Excellence at the University of Rochester
919 Westfall Road
Bldg C, Suite 100
Rochester NY 14618
Bldg C, Suite 100
Rochester NY 14618
Toll Free:
800-345-4372
(National headquarters)
Main:
585-341-7519
Hours:
M-F 8:00AM-5:00PM.
* Offers supportive services for persons with Huntington's Disease and their caregivers.
- Mutual support group for those with Huntington's Disease and those at risk.
- Dissemination of information on Huntington's Disease.
- Care and education to all affected by Huntington's Disease through the Huntington's Disease Family Center.
- Education of professionals towards a better understanding, treatment and care of Huntington's Disease.
- Clinical research and drug trial observations.
Eligibility: None.
Application Process: Call ahead before attending your first group meeting. Call Amy Chesire at 585 341-7519 or email amy_chesire@urmc.rochester.edu.
Required Documentation: Call for information.
Fees: Support group: no fees. Huntington's Disease Family Center, University of Rochester: Medicaid. Medicare. Third party insurance. No one refused service based on inability to pay.
Coverage Note: Cayuga, Livingston, Monroe, Ontario, Seneca and Wayne Counties.
Huntington's Disease Society of America provides outpatient clinical care, support, education and clinical trials for patients and families affected by Huntington's disease.